A mother who set up a charity that provides people suffering from epilepsy with life-saving equipment is this month’s Community Hero.
Marie Baker launched Epilepsy Lifestyle two years ago to give practical solutions to the everyday issues faced by adults and children with the condition, particularly focusing on monitoring for seizures during sleep.
It was Marie’s daughter Aimee’s severe and life-limiting form of epilepsy called Dravet Syndrome that led her to establish the charity.
“A diagnosis of epilepsy can be devastating and I decided to do something to help people turn that experience into a positive,” said Marie. “I wanted to improve the lives of people with epilepsy living in the area and it was good to focus on others.”
Through fundraising and grants, Epilepsy Lifestyle pays for vital monitoring systems that cost up to £800 each.
These recently included a pulse oximeter machine that measures heart rate and oxygen levels for a youngster in Lewes, a digital video monitor for an Uckfield teenager and a mattress monitor for a Ringmer boy.
Marie was delighted at receiving the award which is sponsored by Welbeing, the specialist provider of independent living services and the Sussex Express.
Charlene Saunders, Marketing Manager at Welbeing, said: “Marie has shown a wonderful generosity of spirit in setting up a charity that has helped dozens of families, adults, children and families lead a better quality of life.”
To nominate someone for the Community Hero award, which recognises people who make their community a better place to live, email firstname.lastname@example.org with details of who you are nominating and why they deserve it. The winner receives a meal for two at a local restaurant.
For more details about Welbeing services visit www.welbeing.org.uk
Welbeing is based in Eastbourne and provides telecare lifeline services across the county and beyond. From just £3.68 a week you can benefit from a red pendant alarm service that give peace of mind, security...