“She [the nurse] spends eight hours a month with Owain, mainly in the evenings and at weekends which allows Chris and I to slip out for a stolen few hours at the cinema or a pub meal, reminding us that we are husband and wife again!
If it wasn’t for the Trust many marriages/relationships would be put under much greater strain. This simple but effective lifeline that the Trust has thrown us is one that we grasped with open arms from day one and we will never forget the help you’ve given us in these challenging early years.
So a huge thank you to the Trust.”
In March 2011, Anon said:
“At the James Hopkins Trust, I began talking to other mums whose children were older than mine and who had already faced some of the emotional challenges we were going through. They made me feel welcome immediately but, above all, showed me that having a disabled child isn’t as bleak as I had first believed. There is still so much joy and happiness involved. Many of those mums have gone on to become some of my closest friends and have been my angels at times. The Trust centre at Kites Corner is a place where families can go along and feel comfortable – whether they feel that day the need to laugh or cry. You don’t feel you have to hide your emotions away but that you can show your emotions, confident that those around you will understand and share your experience.”
In March 2011, TH said:
“Moving to the area last May with my disabled daughter, not knowing what services or places I could use, the James Hopkins Trust has been an invaluable source of information. They have been a great source of friendship, advice and support; a place to meet friends regularly and have a catch up with everyone, where people know Emily and all her little ways. Where people understand what you mean when you say you’ve ‘had a bad week’. The Trust is a fantastic service where our daughter is looked after at home so that we can go out as a couple for a night, just the two of us.”
In March 2011, CH said:
Our James Hopkins Trust nurse was a real life Mary Poppins. She was fun, loyal and above all saw and loved the child we knew. She would take him for a few hours each week so I could have special Mummy time with my other son. I trusted her with my son’s life - literally and there aren't many people I could say that about. It has been so important to us that the people who look after our son see this side of him and enjoy him as we do. The James Hopkins Trust nurses do see him as he is and we are eternally grateful to them for respecting his disability while loving his personality.
In March 2011, Ms C said:
I would like to take the time to thank you enormously for the respite care you have provided for my son Daniel. As a mum who was extremely reluctant to receive any help I am now a strong advocate of respite care to other families with special needs children.
In March 2011, JR said:
If it wasn’t for the Trust I wouldn’t have met people who were in the same situation and who have become the closest of friends. Going to the Trust for the first time I didn’t feel like people judged my daughter for being different. Our respite nurse gives me the confidence to let my daughter have some time out from her family and enjoy some independence. She has become part of our family.