For Annabelle's Challenge, a fantastic opportunity has arisen..all the charity work that and raising awareness of VEDS has proved to be worth it and they have been nominated for the Queen's Award for Voluntary Service!
When Jared and Sarah's daughter Annabelle had been diagnosed with vascular EDS, they decided to start a bespoke charity that was specifically for vEDS, so that they could raise awareness for the syndrome, as well as supporting the families who may be going through what they had.
It can be a difficult time, especially as it is such a rare diagnosis, meaning that families going through this, appreciate every bit of support and knowledge they can come across. That is where Annabelle's Challenge comes in to support people and bring a bit of light into what can be a particularly distressing time. Providing support and advice to reduce the strain of the diagnosis, free medic alert and financial support to assist families and possible lifestyle changes. The charity also supports research which is absolutely essential with such a rare diagnosis.
Jared and Sarah were absolutely thrilled to have been invited to attend the Buckingham Palace garden party and to be recognised for their progress in making people more aware of vascular EDS. Events and recognition such as this really encourages the medical profession to research more and do everything they can to find a cure!
If you are interested in supporting Annabelle's Challenge or you require some support, get in touch with Jared on 07790 092735.
