Annabelle's Challenge proudly hosts the first ever family retreat weekend for families touched by vascular EDS.
We welcomed 30 families to The Cliffs Hotel in Blackpool for an informal weekend of relaxing, exploring and a good old catch up. A private 'vintage' 1935 tram arrived at our exclusive stop outside the hotel and transported our families on a full tour of the world famous illuminations along the sea front and back.
On the Sunday we closed the weekend off with talks on vascular EDS kindly provided by Dr Neeti Ghali and Fleur van Dijk from the EDS National Diagnostic Centre in London. During the talks family members and carers had the opportunity to ask questions and give suggestions including potential research projects.
The weekend was a fantastic opportunity for people affected by the vEDS to meet one another for the first time and make life long friendships, it was made possible thanks to our sponsors & donors at ELMC Bury District Freemason's and The Leys School, Cambridge in memory of Carl George.
Shaun Wallwork, vEDS family member “Awesome weekend with some amazing people. Well done for arranging it. It was great to hear so many funny as well as heart breaking stories that’s happened to everyone with VEDS”
