This is a really great cause who give their all to raising awareness, and much needed funds, for Ehlers Danlos Syndrome sufferers! This is a rare condition and most GPs never come across and so often misdiagnose, sometimes with fatal consequences. This cause raises a lot of funds for EDSUK which goes towards helping sufferers and educating the medical professionals. As this is a rare condition, it's not profitable for researchers to investigate it, cancer for eg gets researchers and medical manufacturers bigger profits. So this cause has stepped in where few can. And so for this, they deserve recognition. Xxxxx
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