i had never heard of the condition before Annabelle's Challenge appeared on facebook.Through the dedication of the Griffin family sharing their devastating diagnosis of their beautiful and very entertaining daughter myself and my family now have an understanding. on the BBC this morning they reported Facebook now has over a billion users. what a fantastic medium to raise awareness and promote more research into this dreadful condition, Well done to the Griffin family and especially Princess Annabelle they work tirelessly and selflessly.
The following Cookies are used on this Site. Users who allow all the Cookies will enjoy the best experience and all functionality on the Site will be available to you.
You can choose to disable any of the Cookies by un-ticking the box below but if you do so your experience with the Site is likely to be diminished.
In order to interact with this site.
To help us to measure how users interact with content and pages on the Site so we can make
things better.
To show content from Google Maps.
To show content from YouTube.
To show content from Vimeo.
To share content across multiple platforms.
To view and book events.
To show user avatars and twitter feeds.
To show content from TourMkr.
To interact with Facebook.
To show content from WalkInto.