Harpenden based charitable organisation the A-T Society is committed to helping, supporting and advising families affected by A-T, a rare, neurodegenerative, inherited disease.
Ataxia means poor co-ordination and the Telangiectasia are extra blood vessels which can be seen, especially on the whites of the eyes.
A-T is progressive and affects the cerebellum (the body's motor control centre) and, in about 70% of cases, weakens the immune system as well, leading to respiratory disorders.
Our work involves:
Funding research
Supporting families
Working to improve clinical management
Raising awareness
Research
The Society supports research into A-T principally through funding a researcher based at the University of Birmingham, under the direction of Professor Malcolm Taylor who is a world renowned expert in A-T. Where appropriate the Society provides funding to enable UK researchers to attend overseas conferences relevant to A-T.
Support for Families
Amongst other things we:
Provide information on A-T
Organise an annual Family Day
Make grants for equipment such as computers, wheelchairs etc.
Produce a twice-yearly Newsletter 'A-T News'
Fund a national A-T Clinic at Nottingham City Hospital
Have a counsellor - Helen Hart
Have a family support worker
A-T Society
IACR-Rothamsted
Harpenden
Herts
AL5 2JQ
United Kingdom
Tel: +44 (0)1582 760733 | Fax:+44 (0)1582 760162
e-mail: atsociety@btconnect.com